How to Get Involved

What is Involved?

Are you eligible for Type1Screen?

Who is eligible?

  • People aged between 2 to 30 years, AND
  • Live in Australia OR New Zealand, AND
  • Have a relative diagnosed with type 1 diabetes OR
  • Have previously had a positive antibody test

For those aged over 30 years and younger than 45 years, you may wish to get screened through TrialNet. Chat to one of our team if this might be of interest. Our contact details are here.

Who is not eligible?

  • Someone with a diagnosis of diabetes (other than gestational diabetes which resolved after the baby was born)
  • Someone who is unable to have a blood test
  • A participant, or their legal guardian, who is unable to give consent to participate

What is involved?

Cameron had a blood test because someone in his family has type 1 diabetes. His parents wanted to check his risk for developing the condition.

To participate in Type1Screen you will be asked to:

  • read the information sheet
  • download, print and sign page 9 of the consent form for the relevant age group (i.e. 2-18 years or 18-30 years)
  • email the signed page (page 9) for each person to be screened to type1screen@mh.org.au
  • the team will email you a link to complete a health survey for each person to be screened
  • when the health survey is complete, the team will email you a form and instructions to have a blood test
  • visit a local pathology collection centre to have a blood test.

Getting a blood test at a pathology collection centre is considered to be safe at this time. If you’re not sure, we’ve had a chat with Nicole from SA Pathology to explain what a blood involves and safety measures implemented:

Participants will be informed of their results within two months of the sample being collected. If diabetes antibodies are identified, a second blood sample will be arranged to confirm the finding.

People who have diabetes antibodies will be linked to the closest participating diabetes centre to learn about symptoms of diabetes, and will be offered opportunities to participate in studies that aim to prevent or delay the onset of diabetes.

I’ve just had my 4 year old son tested. If he does test positive for antibodies I like the idea of:

-having him involved in clinical trials that might prevent him going on to develop diabetes or prolonging the time frame before diagnosis.

-having early warning so we can do lots of education around finger prick testing, pumps, food choices and carbs, hypos etc so it’s not such a lot to learn if he does then develop diabetes.

-giving me peace of mind for a few years if he doesn’t have antibodies yet (eg not panic he has diabetes if he randomly wets the bed, has a day where he drinks more than usual etc!!)

Participating Type1Screen Mum, June 2020

Are you ready to get involved?

To get started, download and read our updated participant information and consent form (PICF). The updated forms outline to participants and their families that a positive autoantibody test result can be stressful. The new PICF also includes exciting developments in our antibody assays, which will allow for home finger prick sample collection in the near future.

Information and Consent Form for 2-18 years
Information and Consent Form for 18 – 30 years

If you understand the information, and want to take the next step, sign and email page 9 to Type1Screen@mh.org.au.

Please ensure you email a signed consent form for each person wishing to be screened to Type1Screen@mh.org.au.

Do you have more questions? You might find the answers on our Frequently Asked Questions (FAQs) page.

Perhaps you would like to support us with a tax-deductible donation?

For more information contact Type1Screen. For those in New Zealand email T1screen@auckland.ac.nz